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#TodosConBauti: they will run a solidarity race for a baby who needs the most expensive medication in the world MOST READ NEWSLETTER

By hollisterclothingoutlet 10/05/2022 173 Views

With the slogan #TodosConBauti, on Sunday, November 21 at 9 in the morning, they will run a marathon and a benefit march for Bautista, a nine-month-old boy who suffers from the progressive genetic disease Spinal Muscular Atrophy (SMA) Type 1. To improve his quality of life, he needs the drug Zolgensma, valued at 2 million dollars.

SMA is a progressive genetic disease that prevents the proper development of muscles and generates weakness, to the point of preventing basic functions such as breathing and eating; and Zolgensma is the closest thing to a cure, taking into account that, by means of a virus, the gene that the patient lacks (smn1) is introduced. The drug has a value of 2 million dollars and can only be applied before the age of 2 or reaching 14 kilos of weight.

As part of a series of initiatives that family and friends are carrying out to make the case visible and raise funds to acquire the medication that Bautista needs, next Sunday the 21st a solidarity marathon and march will be held, organized by the Circle of Veteran Athletes , the Physical Education Teachers of the Alessandro Manzoni Institute and the Municipality of La Plata.

#TodosConBauti: correrán una carrera solidaria por un bebé que necesita la medicación más cara del mundo MÁS LEÍDAS NEWSLETTER

As reported, the marathon will begin at 9, will have as its starting point the Paseo del Bosque and includes a competitive race of 5 kilometers and a participatory runner of 2.5 kilometers; while, in the same place and at the same time, a competitive Nordic walking of 5 kilometers and a participatory one of 2.5 kilometers will be carried out. So far there are already 700 registered and it is expected to reach a thousand. Those interested can register by sending an email to [email protected] with the subject “solidarity race”.

Those who are interested in collaborating with the campaign to obtain the Zolgensma for Bautista, can do so to the Provincial Bank account of Gabriela Trofimovih, mother of the baby, CBU: 0140999803200060283909 and alias: POETA.BALDE.RUBIA; and through the 'transfer money' option of Mercado Pago, ALIAS: todos.con.bauti.

Similarly, you can follow the Instagram account @todosconbauti and the Facebook account Todos con Bauti, using #TodosConBauti, #ame and #familiasameargentina.

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